tag:blogger.com,1999:blog-2743876611494720385.post3879383422099173480..comments2016-09-10T04:49:53.897-07:00Comments on Magical Messes: Living with an Auto-Immune Disorder (Or; Why I Became a Hermit)Allie Stewarthttps://plus.google.com/103407968539392258296[email protected]Blogger5125tag:blogger.com,1999:blog-2743876611494720385.post-8057269054973533262013-03-22T00:13:56.937-07:002013-03-22T00:13:56.937-07:00I found your blog on the bucket. Just wanted to sa...I found your blog on the bucket. Just wanted to say I&#39;m so sorry you&#39;re going through this. I&#39;m not going through what you are medically, but am treating for another condition which has be temporarily disabled at this point. If you ever want to talk feel free to pmail me. My user name is desflo. I pray you find a solution. Desiree Bhttp://www.blogger.com/profile/10032452282260107194[email protected]tag:blogger.com,1999:blog-2743876611494720385.post-46450834950867543392013-03-21T16:49:47.652-07:002013-03-21T16:49:47.652-07:00Praying for you! I really hope you figure out a lo...Praying for you! I really hope you figure out a long term solution for this ongoing problem, would love to get together again and hang out! Our if you ever want to have a movie night in I am always game! Melissa Tierneyhttp://www.blogger.com/profile/00492666892542512333[email protected]tag:blogger.com,1999:blog-2743876611494720385.post-89407484894919400212013-03-21T15:34:15.083-07:002013-03-21T15:34:15.083-07:00Oh Allie, I am so sorry you&#39;re going through t...Oh Allie, I am so sorry you&#39;re going through this! I had no idea and my heart is breaking for you! Please, in all honesty, let me know if you need anything. I&#39;m seriously not just saying that. I know we haven&#39;t been as close since we stopped rooming together but I do want you to know that I love you and value you. You are such a special person, Allie. I&#39;ll be praying my heart out for you!Susannahhttp://www.blogger.com/profile/10888956203263380230[email protected]tag:blogger.com,1999:blog-2743876611494720385.post-59232359823710937882013-03-21T07:56:17.430-07:002013-03-21T07:56:17.430-07:00Morning Allie ! Have you consider that maybe your...Morning Allie !<br /><br />Have you consider that maybe your thyroid medications could explain the swelling ? I don&#39;t say that you should quit them, I&#39;m on thyroid medication myself and I appreciate so much the changes... But maybe you could read the fine prints to see if one the side effects could produce such pains. I am on Synthroid since 5 years with 125mg and on Cytomel 5mg, and didn&#39;t see a side effect so far, but I know the list of side effects is big and could grown bigger.<br />I hope you&#39;re gonna find what&#39;s going on with your body very soon. Go on with your scrapbooking projects, it&#39;s a good therapy.<br />Take care,<br />ValerieValerie Andrieuxhttp://www.blogger.com/profile/09967724452562073559[email protected]tag:blogger.com,1999:blog-2743876611494720385.post-85460324658285903062013-03-20T08:46:47.412-07:002013-03-20T08:46:47.412-07:00Allie, I&#39;m so sorry for your pain, fear and de...Allie,<br />I&#39;m so sorry for your pain, fear and despair. What a sad beginning to a wonderful new life with Michael, however, you now know exactly who you married-a strong,committed, loving man.<br /> <br />I suffer from Rheumatoid Arthritis, which is an auto-immune disease as well. I&#39;m on immune suppressing medicines that literally suppress my immune system from attacking itself. I don&#39;t know, but your doctor would, if any of these have been approved for your condition. Such as Enbrel, Humira, Remicade (which I take) or maybe even Methotrexate (a chemo drug I use)it&#39;s worth checking into. <br /><br />My suggestion for getting through this dark period is to tell yourself it will ease- eventually- you must believe this, I cannot stress this point enough, it will ease, make it your mantra until you believe it. I&#39;ve spent time on the dark side (too much actually) and if you can relax into this period, give yourself license to be cared for it may reduce your stress (big bad player with these auto-immune diseases)thus reducing the flare-up. I&#39;m not saying accept that this is it, just accept that this is it for now and work through it. In my experience when I&#39;m flaring my fear of the permanency of the situation sends me to a place of utter despair- the only way I can deal with it is to believe &quot;this too will pass&quot;.<br /><br />You may be aware of the 5 stages of grief? These same stages apply to chronic disease- please take a look at them. http://grief.com/the-five-stages-of-grief/ You can&#39;t rush the stages but at least you&#39;ll have some insight as to where you are emotionally.<br /><br />I&#39;m praying for all of you, there is nothing worse than the inability to help those you love. <br />DonnaPat's Galhttp://www.blogger.com/profile/12595377001015254743[email protected]